Understanding Rett Syndrome: A Practical Guide for Parents, Teachers, And Therapists 2/ed.
- ISBN/EAN
- 9780889373068
- Editore
- Hogrefe Publishing
- Formato
- Cartonato
- Anno
- 2006
- Edizione
- 2
- Pagine
- 208
Non Disponibile
43,00 €
This unique book describes the difficulties and challenges of girls and women with Rett Syndrome, and proposes solutions that can help them in everyday life. Written from an educational perspective, and based on extensive practical, real-life experience, it also takes into consideration living conditions as a whole to provide practical and effective help for all those involved in the care of those with Rett Syndrome.
Rett Syndrome is a severe neurological disorder with no cure affecting 1 out of every 10,000–15,000 female births worldwide. It is now known to result from a chromosomal defect that leads to problems such as mental retardation, serious motor handicaps, epileptic seizures, and difficulties with communication. This syndrome is found only in girls, and usually becomes noticeable during their second year of life.
In this revised edition, the chapters on intelligence and understanding, learning, and communication have been elucidated and deepened. There are also some new sections on digital pictures, computers, and sensory environments.
Understanding Rett Syndrome is primarily intended for people close to those with Rett Syndrome, including teachers, therapists, and parents, but should be valuable to anyone involved with children with mental and functional disorders.
"...this book delivers useful observations on clinical signs, symptoms, and behaviors in Rett syndrome, and does so in a personal manner with specific examples from patients.
"...the suggestions for the management of problematic behaviors and enrichment of the patients' lives are insightful. Readers approaching the book in this hands-on manner will find it valuable..."
Christopher J. Graver, PhD (Western State Hospital) in Doody's Book Review
Maggiori Informazioni
| Autore | Lindberg Barbro |
|---|---|
| Editore | Hogrefe Publishing |
| Anno | 2006 |
| Tipologia | Libro |
| Lingua | Italiano |
| Indice | 1 Introduction 1 Background. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 2 My Own Background and Personal Inducements . . . . . . . . . . . . . . 3 3 Aim . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 4 Sample . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 5 Methods . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 2 A General Outline of the Development and Progress in Rett Syndrome . . . . . . . . . . . . . . . . . . . . . . . . . .9 3 A Brief Presentation of the Individuals in the Study . . . . . . . .11 4 An Account of Typical Symptoms and Behaviors . . . .21 1 Defi ciencies in Perception and Sensory Integration . . . . . . . . . . . . 22 2 Stereotypic Behaviors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 32 3 Dyspraxia – “Want of Success” . . . . . . . . . . . . . . . . . . . . . . . . . . . 35 4 Severe Motor Disabilities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 37 5 Diffi culties in Coordination . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 44 6 Mental Retardation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 50 7 Communication Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 60 8 Emotional Channels . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 71 9 Large Fluctuations in Behavior . . . . . . . . . . . . . . . . . . . . . . . . . . . 73 10 Emotional Reactions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 76 11 Insecure Identity . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 78 5 Guidelines for Treatment and Teaching . . . . . . . . . . . . .81 1 Two Principal Teaching Groups . . . . . . . . . . . . . . . . . . . . . . . . . . . 81 2 Multihandicaps . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 84 3 Understanding the Environment . . . . . . . . . . . . . . . . . . . . . . . . . . . 85 4 Using the Body . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 98 5 Interacting and Communicating with the Environment . . . . . . . . 118 6 Being Active . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 130 7 Expanding One’s World . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 141 6 Postscript. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 163 Appendices . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .165 1 Questions Forming a Basis for Interviews with Parents . . . . . . . . 165 2 Questions Forming a Basis for Interviews with Parents/ Care Givers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 168 3 Questions Forming a Basis for Interviews with School Personnel. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 179 References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 183 Index . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 185 |
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